Book of the Week: Prader-Willi Syndrome by John Hernandez-Storr

In an effort to draw attention to quality independent literature (fiction and nonfiction published by independent authors and indie publishers) and in agreement with BlueInk Review, NSR highlights reviews published on BIR’s site each week.

Prader-Willi Syndrome: How Parents and Professionals Struggled and Coped and Made Genetic History

About Author

Hernandez-StorrJohn Hernandez-Storr’s daughter, Naomi, was diagnosed with Prader-Willi Syndrome when she was a newborn, but it wasn’t until 2009, when she reached kindergarten and struggled, that he realized how much PWS would affect her life. His book details the tremendous challenges parents and their PWS children cope with daily. It took six years to track down and interview the parents, doctors and researchers mentioned in the book, but the effort was more than worthwhile. “From these parents and professionals I learned about the power of love, curiosity, and persistence,” he notes. Hernandez-Storr has a BA in history from Brown University and a JD from Columbia Law School. He lives in the Los Angeles area.

About BlueInk Review

BlueInk Review was founded by Patti Thorn, former books editor of the Rocky Mountain News, and Patricia Moosbrugger, literary agent and subsidiary rights specialist. It offers serious, unbiased reviews of self-published books. Reviews are penned largely by writers drawn from major mainstream publications, such as The New York Times and Washington Post, and editors of respected traditional publishing houses. Select reviews appear in Booklist magazine.

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